(I’m on the far left, in orange pants)
Dear Internet,
It is true, apparently, if you give me a few Guinness, I will do just about anything. Including singing karaoke.
Tomorrow (Friday) marks a few milestones this week I’m pretty proud of. The first being this is the eighth day in a row I’ve been successful in getting something on the journal. My unspoken, until now, goal, has been to write something everyday and get it posted, no matter how minute or insignificant I may think it may be. The hardest part has been the balance between raw and fluff, which has been pretty tricky. My point is to write, even if there is nothing of major news to report, to capture moments of my day or week as I can best remember.
The second milestone is TheHusband and I have revamped our eating plan, again, and we’ve made it through the first tough first week. I also realized with the exception of some tiny chicken pieces floating in a steamed rice bowl I had for lunch earlier this week, our diet has been entirely unintentionally vegan.
I have never shat so much as I have this week.
We have local, organic delivery of vegetables every other week, coupled with our regular shopping, means we eat a lot of veg and fruit. But with our current meal plan, the fruit and veg has been amped up significantly. To help alleviate how strict the calorie counting we’re (I’m) doing in the week, the weekends will be slightly more relaxed. Hopefully with meat in the form of burgers cooked in bacon fat.
The struggle with my weight has long been documented across all incarnations of my journal. Yet here, on this incarnation I’ve been not as brave talking about this topic. I’ve got a blog post started, yet still sitting in draft format for nearly a year, on my body plans for the year. But those plans, as we know, changed drastically. The last several weeks has been well documented on how my world has been changing in fairly significant ways and part of that significance is when faced with task or a goal, I’m not shying away from it as I have before in the past.
Over my shrink appointment this week with Dr. P., I recounted everything that had happened from the sexual harassment to dealing with my mother and all the gooey bits in between. He has also noticed something has changed with me, something within. The corner I knew I needed to turn has finally come my way and as long as I can keep the wolves at bay, then all is right with the world.
x0x0,
Lisa
Tag: Mentally Healthy
what jail is like
Dear Internet,
As the kids say, I’m full of all sorts of feels today.
In addition to the sexual harassment shenanigans going on, I received an invite from my mother this weekend to dinner at her place for Thanksgiving with the words, “It is time to forgive and forget. Sincerely apologize” scribbled on the card. There is a metric fuck ton on that topic I need to write in regards to our estrangement, but not today.
No, today we’re going to skip talking about my pussy and boobs and my mother issues and talk about my brain.
Tonight I had a fairly final appointment with my medicating shrink, Dr. H. I’ve been Lithium free, bipolar and ADHD drug free actually, for nearly a month and feeling pretty damn good about the whole thing. In a lot of ways, I feel like I moved over the hurdle of the mess that had become my life, sought help and while the drugs did not work, found some kind of manageable world that I can exist in the moment and not think of what could/may/potentially happen in the future.
Being bipolar is a fucked up diagnosis. You’re either vilified as being a fucking lunatic and you’re expected, thanks to the media, to accept the condition they present to the masses or treated as the ultimate muse who can spin spiderwebs of creativity at the drop of a hat.
I’ve stopped watching Homeland because I got tired of them treating Carrie’s bipolar as this alternate superhero trait and presenting that anyone with bipolar can go on a sexy times bender, complete with smooth jazz, which warrants a good reason for her demise. Another particularly interesting insight they like to allude to is at ANY TIME Carrie can go bat shit insane! And poof! She’s carted off to the psych ward and given ECT. Against her will.
(I have made TheHusband promise, no matter how bad it ever gets in the future, he will not allow them to give me ECT. Not in a fucking million years. No.)
Life doesn’t work that way, especially when you’re chemically imbalanced. Not by a long shot. When my mother tried to commit suicide a decade ago, getting her checked in to a psych ward was fucking paper work galore – because isn’t it always? The endless amounts of paperwork when your mother has OD’d on insulin is kind of astounding and makes concrete two things I hope to do in life: Not go to jail or get checked into a psych ward.
(They also had Carrie eating Lithium like its candy and IT WILL REACT THIS VERY SECOND. Lithium takes weeks to get to a medicating level and then you have to take into account the blood work involved and the cannots that could dampen the drugs effectiveness. Lithium, when it works, is a miracle drug if you’re willing to give up alcohol, pain relievers, your sex drive, and are prepared for the amped anxiety and ADHD like symptoms to name a few lovely sideeffects.)
I also get twitchy reading these stories about people who do major things in their life — lose a million pounds, conquered a major disease, overcame their illnesses. We’re only given these tiny snapshots of their insular world in these pieces and golden road after golden road on how much better their life now is! Which is fine, but it’s so hard to relate to someone when they gloss over the details and give up this facade of a mirror under the guise of “I get you.” No, you don’t get me. This is why being crazy is well crazy. Every diagnosis may have a blanket term, but how individually we are under that diagnosis varies as widely as the color spectrum.
TheHusband will tell you living with me while going on and off the drugs, was a goddamned nightmare. What Lisa was he going to end up today? Was I going to put clothes on and go to work or would I call in sick because the thought of getting out of bed was too much to fucking bear? Would I refuse to eat for random reasons or cry for hours because of images of baby elephants triggered that particular spell on that particular day? And I haven’t gotten into the mania yet which transfers, sometimes for me, into excessive shopping and long periods of not sleeping. I’m talking days of going on a few hours of sleep and lots of caffeine.
Sometimes, both at the same time.
Being crazy is ugly. You lose friends who can’t handle the mood swings; you lose jobs, lovers, your sense of self-worth, your dignity, your grace. One minute you’re high on the world and the next, you want to burn it all to the ground and salt the earth. Sometimes the highs last for a really good long period, when the world seems that much sharper, in focus and BOOM! Without warning, it flips and you’re huddled in week old clothing why you can’t bother to get up to shower. You can track my entire adult career in education, jobs, and relationships on where exactly on the spectrum I was for my mania or depression.
Being crazy is lonely. People turn away from you, friends wander off, lovers break up with you, you have no real outlet to say, “This is me. This is who I am. There are going to be some really amazing days and some really awful days, but if you hang on, it’ll be okay.” Because you have, in a sense, said this before at the last break-up, the last phone call, the last email to someone. They’ve heard this story before — just get some help, they will tell you. Get some help, put your world back together. But what if, like in my case, the help that is supposed to set you free actually imprisons you? I cannot physically take the drugs for my disease. I have tried numerous times and each drug cocktail has shaved off days, weeks, months, sometimes years of time that I will never get back from all the lost time of experimentation. Now what? There is no handbook for this sort of thing, how am I supposed to put my world together if my world is so fragile, the smallest of changes can send it shattering into a million pieces?
Being crazy is exhausting. Whether from the drugs or the pure, raw sheer strength of keeping yourself together during the hour, day, or even the minute. The constant on guard of your feelings, emotions to make sure they don’t explode over everyone you meet.
Today I am neither ugly, lonely, or exhausted. Today has been a good day, as was yesterday and as I hope tomorrow is. Being free is knowing I have done everything under my control to keep this disease in check, to as prepared as much as I can for when the next wave hits, and hope that it will all be over soon.
I end this with a quote from one of my favorite philosophers:
There’s no point to any of this. It’s all just a… a random lottery of meaningless tragedy and a series of near escapes. So I take pleasure in the details. You know… a Quarter-Pounder with cheese, those are good, the sky about ten minutes before it starts to rain, the moment where your laughter become a cackle… and I, I sit back and I smoke my Camel Straights and I ride my own melt. Troy Dyer
x0x0,
Lisa
This day in Lisa-Universe in: 2011
Of broken bricks and forgotten combs
Dear Internet,
Despite all the scrupulous packing (and re-packing) and organizing, I discovered upon my arrival in Monterrey I had forgotten a comb. Now granted my hair is short and doesn’t really need a good brushing, but as the gods willed, if you forget something that may not have been that big of deal now it becomes a massive big deal later. Thankfully I was able to make my way to Walgreens before my world collapsed from 3″ strands of hair not being properly sorted out, which could have proved disasterous.
I’m in Monterrey, sitting in a Starbucks around the corner from my hotel on my one day off this week. Tomorrow kicks off the conference in full gear, and I wanted this day to be one of me time and relaxation as I knew as the week wore on, the conference would wear me down. While my energy levels have reappeared since I came off the lithium, I’m more conscious of personal space and needing to escape into my own world for awhile before any major social interactions are going to occur, even more importantly when there are large groups of people I do not know.
I arrived in Monterey after a very full day of traveling, which started at 8AM EDT and ended at 5PM PDT, which mainly included my hopscotching my way around the US. As I was checking in and getting sorted, I ran into one the panelists who will be presenting with me, and his partner, both whom graciously invited me out to dinner. After the hopscotching around various airports, I was delighted to get a chance to get a bit of a stretch around the area before heading to bed. We had dinner on the wharf and I was so determined to have my bit of vodka and Guinness, which I made happen, before anything else occurred. By the time the evening wore down, combined with jet lag, travel lag, and other wordly lags, I was hoping to fall asleep when I got back to the hotel and make it a fairly early night.
But nothing is ever really that easy as the fates again decided I had not sacrificed the correct amount of virgins to satiate them as not only was I not able to fall asleep at a reasonable hour, I was wide eye awake starting at 7AM local time despite the alcohol consumed the night before and coupled with jet lag meant I was running on 5-6 hours of sleep.
I laid in bed most of the morning, pondering what I was going to do for the day while watching terrible reality television that I seem to only care about when I’m not at home. I caught an episode of SECRET PRINCES, which turned out to be the pilot of the second season. Later, I gleefully regaled my breakfast companions the background stories of four unlucky in love royals who came to America, Austin specifically, to find love while undercover from their true identities. The whole show is a bit daft, of course, but there is some kind of glee about these bumbling fish out of water experiences that I can view like Margaret Mead, except all virtual and not with binoculars in the grass.
The rest of the day has been lazy, walking around the downtown core and grabbing coffee to keep the energy going. The weather, and as one must always talk about the weather when travelling, turned for the worse, I ended up back in the hotel earlier than anticipated because sitting in a coffee shop with my back against the drafty window is neither noble or smart and the outcast seemed to huddle on rain for the rest of the day. It was like I had never left home.
I decided to use the rest of my time to work on personal and work projects, only to discover my charging brick for my MacBook Air is dead, which explained why some of my other devices were not charged this morning when I grabbed them on the go. Here I thought the problem was with the room outlets but that is turned out to not be the case. Even with next day shipping, I missed the window to get a new brick to me via Amazon tomorrow as it won’t show up until Tuesday and I’m leaving ungodly early (4:30AM) Thrusday morning fot the airport. Thankfully I brought along my iPad, so the laptop will only get used in extreme emergancies while I mainlined everything else elsewhere.
I had some cause of worry for this trip, not of the conference or the people I was going to see, but the worry of my own behavior the further I get from my last dose of lithium. The same week I was first drug free, I was hit with PMS enough to cripple me and the mood swings enough to remind of all the 100s of reasons I wanted to be on mood stablizing drugs. Once that was over, and my inner world was smooth again, I’m finding myself feeling much more of myself than ever before.
I am desperate to not let this be a manic episode stemming from coming off the drugs, but it’s difficult when I’m only sleeping on 4-6 hours a night, I don’t get catch up sleep when I can sleep in, and I seem to exist on zoom the entire day with very little caffeine. The crash will come, there is almost always the certainy with that, but I’m praying to whatever will listen to not let it be so terrible that it is crippling and more importantly, I can have the forsight to be self-aware of it as it happens. It seems like a lot to ask, but if the drugs are not helping then I need something to guide me through the uncharted spaces to get me back on track again.
x0x0,
Lisa
in the forever now
Dear Internet,
This morning, in between telling TheHusband to continue smacking the snooze button so I didn’t have to quite get up, I watched the sun rise from our bed. Half propped up on pillows, for about 45 minutes I just watched the sky change from brilliant red to a deep orange to a medium pink and finally fading into lemonade yellow. I thought of nothing as I watched but I was also struggling between being fully awake and the call of dreamland and our fantastically cozy bed. When I was close to being 100% lucid, I enjoyed the spectacular sight that was ever changing in my window until I had to absolutely, positively had to get out of bed.
Ages ago when I was hopping on and off Weight Watchers, I remember in the beginning one of the section leaders giving a lecture about personal love. Not just sexually, but remembering as we struggle with our challenges, regardless of what they are, to always do something for ourselves which can be as tiny as reading in a hot bath with favorite scent in the water to buying a new THING or could be on a much grander scale, like a trip or a large purchase.
The point being is to always remember to love you.
A few years later when I started dialectical behavioral therapy, much of the same concept applied — you need to create a room, a space, a THING to soothe you to bring you back from the edge of whatever it was you were feeling frantic about. This is kind of the underlying architecture of DBT, with the idea of changing one little thing and creating a safe haven for yourself can create a whole new world.
This is something I think everyone struggles with regardless of the state of their mental health; the ability to actually say to themselves in the mirror, “I love you.” And mean it.
——————–
The weekend had a potential, much potential, which at least gave me some breath of hope. I’m now on day 4 of no Lithium and so far, I feel okay. The worst of the side effects, with the Lithium and the tapering off, have passed. I don’t feel like I’m floating, face up, under water as much as I have been. Even if the days are not extraordinary, the more the drugs are emptied from me, the more hope for them to become extraordinary increases.
I’ve started collecting moments of the day to create touchstones to reach back to when things start getting rough. Watching the sun rise in bed, smiling randomly at a stranger, a particular outfit that works well, or writing a random note to someone just because. If I create a fortress of these touchstones, then nothing can stop me as I battle this disease, this taker of life.
And I will win.
x0x0,
Lisa
we were all waving flags
Dear Internet,
This morning I cried because I couldn’t put on a pair of shoes.
The inability to put shoes on is not an uncommon thing, but it is a frustrating one. Over a year since my first surgery and six months after the second, I still unable to fit anything beyond flip-flops or Chucks on my feet, with the occasional foray into a ballet flat. This is made even more difficult as my right foot post-surgery is now an 11.5W while my left is a 10.5B.
I’ve been piecing out my shoe wardrobe to keeping only what fits or I absolutely positively love rather than keep everything. While I was never really a heel girl, even the ones I own and loved are almost useless to me at this point and into the pile they go. A recently purchased and rather expensive pair of flats I got at 75% off, talked into buying them via a beloved shoe courtier who silkily promised they most assuredly would fit, turned out to be a “thank fuck I did not buy these at full price” mistake. Several wearings indoors per their instruction and then the eventual public airing of the shoe found they were, after an hour or two, almost unbearable. How a pair of flats could cause so much issue with my feet is beyond me. I do not blame the shoe courtier for the pressure because they do fit at slip-on and comfortably so at that; I blame my feet for their rebeling at being fashionable.
My current obsession is finding a pair of dress boots that are flat heeled (more due to height than comfort) and can accommodate my tennis calves and odd feet. Boxes have been arriving from various vendors for me to try on — funny how I never thought of the shipping of shoes from Zappos and the like to Throbbing Manor to be similar to the receiving of gifts from my subjects but there you are — and again, the frustration at mismarking and advertising of wrong sizes and widths is causing more stress. Last winter, after the first surgery, TheHusband counted I had purchased and returned a dozen pairs of everyday boots before finally finding a pair by happenstance at the mall.
The crying this morning was not simply over the fact my shoes don’t fit, but more about this bottom of this often never ending and seemingly black oil pit I find myself in. Yes, it sucks I couldn’t wear my walking shoes to go on a walk and had to opt for flip-flops, but it’s not the end of the world. Yet to me, it was and also rather symbolic of everything going on in my life.
As I continue the tapering down of Lithium, in fact today is the first day I’ve been Lithium free, my moods have started shifting like a radiograph, even more rapidly in the last week. I started bawling yesterday reading Facebook and then proceeded to go into a several hour depression that quickly, and shockingly, emptied me of life. The black clouds descend so quickly and with such force, I felt powerless. TheHusband spent a couple of hours walking me through my feelings, which continue to be a catalog of everything I feel are to be truths:
- Nobody loves me
- Everybody hates me
- I will never be happy
- Everyone leaves me
- I will not amount to anything
- I will have never accomplished X,Y,Z
- I will never have the kind of life as seen by X,Y,Z
- I am too old
- I am too young
This has been the same laundry list since I could remember keeping track of all of my demons.
TheHusband got me calmed and by bedtime I felt relatively able to sleep with peace. This morning however, when I woke, the black cloud was back and circling with a vengeance. Since we woke at mid-morning, the sun had been up for several hours and our bedroom was bathed in light which was even more depressing. This blinding happiness depressed me more as the idea of staying shut in all day while the day glowed like the summer. Toss up: Stay indoors and become more depressed because everyone is seemingly having some kind of life, the world looks shiny and new OR go outside, even against your will, to at least experience what it feels like. Which will hurt more?
TheHusband made the executive decision we were going to walk Wednesday and then talk a walk ourselves. Chop-chop, wash your face, put on a sports bra and let’s go. He tempted me with treats from a local bakery conveniently located around the corner from our house if we did at least a quick jaunt around the neighborhood. Instead, we found ourselves roaming farther and longer, and the quick jaunt turned into a four mile walk in flip-flops, which ended with breakfast at a local place and some Gerbera daisies for the dining room.
We made half-heartedly plans for the afternoon, but found ourselves hiding in our offices while I read and wrote and TheHusband played video games. I was also opposed to the idea of having to put on pants for some reason, but that is not a black cloud thing, that is more of a sensibilities thing. Because, well, pants.
On occasion there will be days where I’ll get a glimpse of happiness, where I know that even at the darkest hour there will be a snap and things will become stable again. That as is before, as in the future, and as is the now, I will climb out of this slick pit of despair and change something. It’s hard to remember the positive in your life, when you’ve gotten so used to the idea that happiness is fleeting. HOW DARE YOU NORMAL PEOPLE HAVE HAPPY LIVES? Which is why I cry at Facebook. And stalk some people’s lives online because I find it so fucking hard to believe someone could legitimately be happy. SURELY, they must be faking it. Or projecting it. Or something. The world is unreal, ergo, what I am seeing is also unreal.
It’s hard to remember not everyone is like me, that feelings are felt and gone so fast, their tail is often the only reminder they are there. It’s hard to remember often what I’m seeing in other people is really a projection or a sum of their life, I don’t know everything going on in their world. All I do know, their happiness reinforces my lack of having any. It’s hard to remember a trigger by something sending me into a spiral, should not be reinforced by swimming in that sea.
And even harder to remember, no matter how prickly I may be, I am not unloved.
x0x0,
Lisa
This day in Lisa-Universe in: 2003
two pints of lager and a packet of crisps
Dear Internet,
Randomly discovered today this week is Mental Health Awareness Week. I’m not sure if I had found out sooner if I would have done something to celebrate, you know, other than going off of Lithium. So we’ll just chalk it up to it’s the thought that counts.
Hello there.
I’m coming down from my last dosage of Lithium and the last few weeks have been kind of an emotional nightmare. Keeping it all together has been much more exhausting than I would have figured and I’m attempting to save all of my energy when I head to California at the end of the month for Internet Librarian conference, of which I’m on a panel. Professional development for the fucking win! The cost of the trip is bordering on staggering as flights are more expensive (GRR is a large but not really airport. Monterey is the same.) then if I had flown out of a metro area. The conference and pre-conference times start from the weekend until the middle of the week, which jacks the flight price higher. So then, of course, I have to have more days at the hotel (5 nights, 6 days). Now I’m whinging about money and time, which wasn’t my intent.
I just hope I’m somewhat back to normal by then. By back to normal I mean not what I’m feeling right now.
At first the way I would describe myself is sharp, like a knife. Anything coming close to me will get poked. My physical boundary space is highly protected. I shut down how I feel emotionally, about anything really, unless provoked. Being provoked could range from someone outwardly doing something to me to someone annoying me enough in some capacity I snap and give them a what for. Or, more often then not, I’ll just choose to ignore them. It’s much easier online, and as expected, in person is much more difficult.
As one would expect, it’s quite lonely here.
Some days I grasp at the straws of which I proclaim, silently mostly, I AM Lisa Motherfucking Rabey! I have done great things! Before turning into a sobbing mess a few minutes later. Those brief seconds are the sign I know not is all but over. I’ll keep taking those flashes, no matter how minute.
One of the small steps I did to help with, well, everything was getting rid of using our bedroom (and bed) as my personal office space. The tired laptop hobbling along I’ve been using as my desktop has finally bit the dust and I just decided to dock my Air. Moving all of my electronics out and also forcing me to sit up and use a desk should start the mental separation of tranquility and solace (bedroom) and pew pew of the digital world (physical office).
I should move my DS3 as well but you never know when you have to check turnip prices in Animal Crossing.
x0x0,
Lisa
This day in Lisa-Universe in:
la princesa de los Ingenios
Dear Internet,
It’s the 272nd day of the year or the end of September, whichever is easier to remember. As I quipped to TheHusband today, my favorite time of year for it’s one of the few months we’re not running our boiler or the central air, ergo the electric and gas bills are down.
And here I bet you thought I was all seriousness and no fun.
I’ve been purposely withdrawing from a semblance of social life as I meter down on the Lithium. I’m currently taking 900mg a day (I started out at 1500mg), and have found that this particular dose is working well for me. At the advice of Dr. H., who suggested if I found a level that worked for me to stay there so I’m heeding his request.
Most of the problematic side-effects from the higher doses have gone, which has been a tremendous amount of relief. As I don’t know how I am going to respond on the lower doses, I thought it best to curtail anything I don’t need to be actively involved in. This includes but was not limited to withdrawing my volunteer work with a few local comic cons happening this fall, my application for a part-time job at a new local comic book store, a few classes I was going to take, sponsored by Grand Rapids recreational department, and a few more things.
If my absence around town before was due to mobility, before that to some sort of depression, this time for a fairly sensible reason: my mental health. Some of the scariest moments this year was going on a new ADHD drug and having it take over my life. When I sampled Adderall and Focalin, I was living in emotional hell and the strain of being “normal” for everyday things took its toll.
I became a sketch of a person who only seemed to exist in novels or on a television show.
This is always the part that never seems to get discussed: the ramifications of going on/off controlled substances and how if done wrong, can fuck with your life in many serious ways. This is the reason why I write about because I want others to know they are not the only ones going through this particular hell. I also noted to my small support circle of those who also were gifted with being Bipolar my tactics and plan and they also agreed what I was doing was sensible.
This entire year has been exhausting. And I feel incredibly vulnerable, tender, and weary of the world at large.
My session with my talking therapist, Dr. P., have been ramping up pretty well. A year into our therapy and I’m finally revealing more about the inner core of me than before. I’m realising more so than ever talk therapy may be one of the few drugs I have left in my arsenal and I don’t want to waste it on discussing stupid things. I need to get rid of the burned husks and lay it bare.
I’m still solidly working on my archives, bouncing through different back-ups to add back in here at EPbaB. TheHusband often reminds me the back-ups I pulled from former SQL tables, still chock full of injected code, can easily be cleaned up by him. I then explained there is something Zen in the grabbing the data I need and cleaning it up myself. It can be so automatic but at the same time, soothing. There is sense of accomplishment to the act his fancy scripts cannot give me.
I’ve been spending a lot of time in 2003, mainly working through the entries where I found my high school sweetheart when I moved back to GR and what happened after. In 2008, he would track me down to my place of work to try to rekindle something, and follow up with the same move in 2011.
Reliving that extremely short period of 2003 has been much more painful than I would have imagined even a decade removed. I was so absolute and sure about our relationship even though he failed me over and over again. I was smart enough in 2008 and again in 2011 to recognize the bridge he was trying to sell me was never, ever going to materialize. It also didn’t help matters after 2011 connection, I found out he was still living with his girlfriend of many years and has a long rap sheet for various offenses. Politically, we’re so far apart it’s laughable and his various social media streams indicate he’s one step away from writing a manifesto while solitary living on the mountain.
In 1989 we were not an ocean apart. By 2003, no matter how much our hearts begged to be joined, our differences outweighed us. By 2008, I had no idea who this man calling on me was for he was not the man I had fallen in love with 20 years prior. By 2011, I was just tired of the ping ponging and the lies.
It is like a bullet has been dodged multiple times. The 17 year old me weeps for the death of someone she had loved, who had died many, many years ago and instead now sees just the shell of a person she used to know.
But it is finding those lost moments of time, which are ripe in their honesty and candor, so appealing as I go through my archives. They remind me I would not be here today without these events happening, the decisions and sometimes the regrets I have chosen. My personal history may not have world changing moments, but there is a richness to the layers of my struggles, pain, and happiness that helped define me as a person and charted the course of my life.
And it helps to remind me, as I come off the drugs, all of that is inside of me. That life, no matter how monochrome it may feel, can always randomly burst into technicolor.
x0x0,
Lisa
This day in Lisa-Universe in:
My history’s mysteries, curios, and future delightfulments
Dear Internet,
I’m so terribly glad the week has ended.
It began the previous week when a fire at work started out as a slow ember. By Monday, it blew up gorgeous blaze that only I could fix and spent all of my waking time working on the problem through the course of the week.
Monday eve I saw my medicating doctor, whom I’ve partially fired. He agreed to start downgrading me from the lithium, which is going to take about a month or so to happen. He’ll still be my klonopin dealer, thank fuck, but my involvement in the world of chemical imbibement is going to be gone.
Tuesday saw the advent of my period, who’s new thing is to play a game of “Heavy, heavy, normal, light, YOU ARE GOING TO BLEED TO DEATH!!!!!” pattern by the end of its cycle. Tuesday also was the day of my EEG, which after the procedure I had the energy of slug and slept for most of the day.
I taught all day Wednesday and Friday.
Thursday was the day all faculty had to have their projected performance evals done and turned in. Mine was not so. When I was at work, not teaching, not on the reference desk, I was trouble shooting the aforementioned gorgeous blaze that the final data collection submitted to IT was closing in on half a dozen pages of notes and results, which was submitted on Thursday.
Friday morning an email from my dean on why my eval was not completed and he wants to see me ASAP. My response was a copy of the six page ticket I opened with IT and an explanation of what I had been doing for the past week and half. I promised to finish the eval this weekend, but of course! The online system we use for such things, running on Oracle, is dead in the water. Oh, how bittersweet! Monday’s early appointment with my dean should be loads of fun.
TheHusband and I spent a good portion fo the weekend cleaning – it’s that time of year you know. People get overly excited for decorative gourd season and the onsalught of pumpkin spice latte whatever. Me? I dream about cleaning. We divided up the work over two floors and two days, and if we’re honest, we probably didn’t work as hard or get as much done as we had planned. But we’re okay with that, as we plan on pecking at it during the week
I burned through a lot of appointments this week and some commitments that I have set up for this upcoming week are going to be curtailed. I’ve decided to start reigning in on some things for the moment, only temporarily, as I wean off the drugs. If anything has been learned of the lesson of my drug life, the lack of any kind of emotional planning for what is going to happen is naught. Yes, I get it – you can’t control when the crazy comes but it would be nice to at least have an inkling. Thus, I’m clearing everything off the decks while I detox.
During the downtime this weekend, I worked a lot on the archives the site, hanging out mostly in 2010 – 11, which was not as interesting as 2003 or 2008, but there is a lot there for me to process. I also updated a few projects that were found such as Book List and To:Be Project, both which will remain current.
I get a hankering to look at the archives as work continues because seeing some of those years fill in makes me happy. I don’t only feel like I’m doing something here, completing a task, but I feel like I’m making art.
x0x0,
Lisa
frequency ranges and spatial distributions
Dear Internet,
I learned today that one cannot tweet when one is having electrodes placed on their skull. But then, you’re so tired from the sleep deprivation, the last thing you want to do is lean over and grab your phone to tell the world you’re beginning to look like the Bride of Frankenstein.
The EEG test required me to be sleep deprived, so I fell asleep at midnight and woke up at 4AM. No caffeine. At 7:15, I woke TheHusband up for us to head to the hospital where the procedure was going to take place. I was feared I was going to end up getting amped up on adrenalin that would prevent me from falling asleep during the procedure. I also feared of falling asleep while driving. There are times when having a husband is useful.
The EEG testing unit is buried in the bowels of the hospital, a set of complicated instructions arrived in the mail, but we got there will little delay. After I checked in, I was called back by one of the techs who was admonished that “Donna has to learn patience. I have to finish checking her (meaning me) in before Donna can have her.” More conversation. I’m told to sit back down. Then stand back up to follow the not Donna to the actual testing area. The not Donna kept apologizing along the way for what has just transpired. There seems to be some drama fraught at workplace.
I meet the Donna when I’m led into the room where the testing is going to take place. Donna goes through my paperwork and seems perplexed as to why I am here after I answer her questions. I document my seizure history, starting when I was 3. She then wants to talk about “my other issues,” which she means my mental disorders. These I had already mentioned to her earlier questions and I notice she has a hard time saying their names, her mouth seems crippled. I say them clearly, for her to make sure we’re clear: Bipolar I, Borderline Personality Disorder. ADHD. General anxiety. I explain, again to her since she seems confused, some of the symptoms associated with one disease is duplicated across other diseases. For example, the tremor in my right hand and leg, which happens rarely, is from the Bipolar, not neurological.
Donna’s seemingly reluctance at my answers is making me anxious. I find that slightly hilarious so I giggle while she finishes up my paperwork.
Prior to the placing the electrodes, the not Donna measured my skull and gave Donna seemingly random numbers that sounded like some sort of key, “6. 5.8, 6, 6, 5.8” and would act slightly intrigued when something came up as a “7.” “Are you sure?” the elder would ask. “I’m sure. It’s a 7.”, the junior responded.
I still have no idea what they were talking about.
After my head was measured thoroughly, and marked all over with red grease pencil, they began placing the electrodes on my head, using a heavy glue for the attachments. I’m assured the glue, another sticky product, and the grease pencil are all water soluble.
Donna and not Donna start working on placing the electrodes me, one obviously more confident or has been at her job far longer than the other. Donna’s confidence in what she was doing overshadowed the other tech, who while as agile with her fingers, often seemed to pause or was hesitant about what and where she should mark. I was getting annoyed with the confident one as she marked and place the electrodes on my skull, she had a habit of pulling my hair just enough to make me cringe for a nanosecond, but not so much that it actually hurt. Since her counterpart managed to not do this, I took it as some passive aggressive act about her job. This was cemented when one of the electrodes seemed to apparently not be working correctly, as she worked on fixing it, she had no problems being rough with moving and cleaning the electrode around my head, pulling my hair roughly a few times about with the shift.
After I was wired up, my head was wrapped with several rolls of gauze and I was told to lay down.
The room was sterile and devoid of any comfort. I was wearing a cardigan, sports bra, tshirt, and yoga shorts and I was shivering. The not Donna asked if I wanted a blanket, which I gladly took. I couldn’t get warm and I tried not to be scared.
There were several tests that were performed, the first of which with my eyes closed, various patterns of flashing lights were pulsed in front of me. Some flashings did nothing to me, others caused my eyes to rapidly move. Was that normal or was I having some sort of non-epileptic seizure? Another test was a breathing test where I breathed out, from low in my diaphragm, for three minutes. Harder than it sounds. The final test was the sleeping test, in which my brain waves were measured as I slept for 20-30 minutes.
Apparently I conked right out, because one minute the Donnas are talking to me and the next, I’m being woken and informed we are done. I was uncomfortable in the room, cold still. I’m a side sleeper, something I couldn’t do for the test with my head wrapped in electrodes, thus the fact I slept was surprising.
The Donnas spent a few minutes unwrapping me, taking the electrodes out. The not Donna hands me a comb similar to the one we used to receive in grade school on picture taking day to run through my mop to get the electrode gel out and I laugh because my hair would break such a comb. I run it through anyway and it pulls and tugs but does not yet break, that it is easier to use my fingers to hunt of gel bits. Once I’m made somewhat presentable, I’m let free and taken back to the waiting room where TheHusband waits.
I’m told I will hear in 7-10 days from my neurologist.
Me, personally? I’m betting it’s what the doc said: I was epileptic when I was a kid and now the symptoms I’m thinking are epileptic are actually non-typical migraines.
We went to breakfast and came home by 11A where I slept for a few hours and TheHusband went right to work. I spent the rest of the day lounging, keeping up with my RSS reading and TV watching.
In other news, my appointment on Monday with Dr. H., the medicating doctor, went as I had hoped. He agrees to take me off of lithium, which will be much more involved process than I had hoped. I had already taken myself down from 1500mg to 1200mg, so I’ll remain at 1200mg for the rest of the week. Then I’ll go down to 900mg for a week, then 600mg for a week, then nothing. Dr. H. also cautioned that if I felt good on a particular dosage, to stay on that dosage and call and let him know. So if the crazy is tempered by 600mg as opposed to my 1500mg, then bully for me. I’m willing to do this, but if things don’t work, I’m not staying on it. Period.
I can almost taste the mental freedom and it will taste delicious.
x0x0,
Lisa
This day in Lisa-Universe in: 2010
she-bear
Dear Internet,
TheHusband and I were set to go up to Throbbing Cabin last night but opted to stay home to circumvent the potential traffic bomb of travelling on a holiday weekend. Our plan, then, was to leave this morning and stay at Throbbing Cabin for the rest of the weekend, coming home on Monday morning.
This morning, however, had other ideas
When I woke up, I went into a massive panic attack where I refusing to not just not leave the house, but I was not going to leave our bed, or even get dressed or any thing resembling personal care. I became so agitated over the prospect of leaving, moving, interacting with people, I started to get into manic mind mode. TheHusband, who had been out walking the dog when the attack started, returned back to our bedroom to my meltdown.
When I saw him, I immediately burst into tears.
Needless to say, we’re not going anywhere this weekend.
TheHusband has learned to stop asking me what is setting off the panic attacks because I never know. Sometimes it’s mental, sometimes they are physical. Sometimes I can ward them off, and others, like today, I’m overwhelmed by their sheer control over me.
The attacks, or in this instance the need to shelter myself from the world, has become more intense over time. I often feel hyper sensitive to the outside world. People. Situations. In my head, when plotting a set of errands that require me to leave the house for long periods of time, I attempt to sort them to make them least painful and less having to interact with anyone. Sometimes, more often than not, I lie to get out of situations because the thought that I would need to be around other people, or more rightly in places that are not familiar, makes me anxious. My house is my touchstone and if I cannot have things set up the way I need them to be set up to function, then things start to break down.
While my depression in the past has been the cause for decrease in sexy times, the drugs have amplified sexy times, along with everything I have just explained. I’ve always had voracious attitude towards sex and with nearly a year on Lithium, it has dried up like an October leaf. I was telling a friend of mine recently, who was newly diagnosed as bipolar himself, I could have Alexander Skarsgard naked on a chaise reading a book in front of me, and I’d be, “Eh.” I don’t want to touch myself, let alone my own husband, and I could not even summon the desire for a naked Alexander Skarsgard. Or James McAvoy. Or any of my fictitious husbands. I used to be the girl who wanted to have sex every where and with everything, and now I would just like to put the kettle on and have a good pot of tea.
And yes, I have a fairly healthy vibrator and dildo collection that is currently gathering dust. Which is a shame as some of them are expensive and were gifts.
At my last medicating appointment, Dr. H. was absolutely positive that by taking Klonopin at night would help some of my issues. The idea being if I take the drug at night, I will get a sound sleep. If I get a sound sleep, then I will feel rested in the morning and more at ease.
Except that didn’t work. After trying this for a week or two and still feeling exhausted and pent up, I told Dr. P. who suggested I take the Klonopin earlier in the evening, say 7PM instead of 10PM. The reason is that Klonopin releases slowly so if I’m taking it later in the evening, by time I wake up, I’m groggy because the drug is still working. Then I start amping up on caffeine to get over the hump and the cycle begins again.
Dr. H. gave me a prescription for Wellbutrin, and after several weeks of circling it like shark, I bit the bullet and got it filled. Numerous friends of mine with similar brain issues have all reported good things with Wellbutrin and as it was not a SSRI, I figured it was worth a shot.
The first few days of Wellbutrin, I was downright cheery. I didn’t feel the energized pep that several friends reported, but I was honestly okay with all of that. By the end of the first week, the dark clouds started to form and for the entire second week, I was hell on wheels. It was not so bad that other people knew, or commented, but it was so bad that I picked up all the signs that this was not going to end well. My meltdown this morning was the final straw and I stopped taking the drug.
Some medicating therapists will have you push on through these periods because after the drug settles, it is smooth sailing. I can’t do this, emotionally, physically, mentally, or financially. My brain chemistry is such that what takes someone 21 days to metabolize a drug, it takes me 7. I may have a fight on my hands with Dr. H. this week because he’s going to report back to me my lithium levels are still in the therapeutic range and I’m going to tell him that regardless if they are, I need to get off that drug in a safe manner because I’m done with this experiment.
A year ago when I called Dr. P. to get my life on track, I was open to the idea of drug therapy because I wanted the pain to end. I wanted a way to chemically fix what was broken if talk therapy didn’t work enough. and to fix what behaviour modification could not fix. Dr. P. recommended Dr. H., who confirmed the existing diagnosis of ADHD, Bipolar I, Borderline Personality Disorder, with a top up of anxiety.
The idea was to get my mood stabilized with lithium, then start adding in the ADHD drugs to control that. Once we found the combination, everything would be grand!
Well, not so much.
Reading through some of those old entries, a lot of patterns begin to show. The drugs, mood/ADHD, are clearly not working. I can’t afford to emotionally keep putting my life into upheaval every time I go on something new to see if it works.
This nine month experiment, while peppered with good intentions, has crippled me more than I could ever imagine. Feeling myself hit the wall, time and time again, the disappointment I’ve laid on myself when something didn’t work, the guilt I built around me when I couldn’t complete a task, and the friendships I lost because I was not the person they thought I was.
The constant stress of wondering who I was going to be that day when I woke up, and how that affected work and personal relationships.
I’m done. I don’t want to be this girl anymore, who hides in her bedroom afraid of the world. I’m done not living a life because I feel too medically incapacitated to do so.
The new plan is to get weaned off of Lithium, and start a diet and exercise routine because literally, every book on bipolar talks about the lessening symptoms if you do these two things. Continue to see Dr. P. for talk therapy, once a week as current or more if he warrants it.
Anything has to be better then the now.
I want my life back and it looks like, I’m the one whose going to have to go get it.
x0x0,
Lisa (Day #36)
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